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Re: All About Autism
Posted: Thu Jan 10, 2013 3:32 pm
by jme
Hi Elmoworld,
Thank u for the sharing. I just started my son on biomedical treatment a few months ago. He did mineral analysis, organic acid test, gluten/casein peptides test n blood test for vitamin D. I was advised to let him do IGG test but am quite reluctant to do so. This is because I have read sharing from mothers (from the states) that after a year of restriction on "high intolerance" food, those "moderate n mild intolerance" food became high intolerance instead. I might be wrong but I concluded moderation in food choices is better. However, I am not against doing IGG test. I believe it is better to know what type of food would create issues to our children's health and avoid over consuming it but not completely avoiding it. Right now, it is the cost of the test that is stopping me to do so.
However, I agree with u that it is good to do gfcf. I have tried but failed. Gfcf is tough. Too tough. It has to be 100% gluten n casein free and there r too many types of food with hidden gluten n casein. I cannot do it n can only try my best to eat lesser of it n supplement with enzyme DPP4.
Did your child do mineral analysis? How did your naturopath know what is he deficient in?
Re: All About Autism
Posted: Thu Jan 10, 2013 3:32 pm
by mashy
I saw a gal with polio about 10-11 yrs old had OT there...
Re: All About Autism
Posted: Thu Jan 10, 2013 3:38 pm
by jme
Biomedical treatment is not common in Singapore. I have seen so much improvement in my son that I started doing on my NT girl, my husband n myself too. I really hope arielmermaid n lavendery can come here more often to share their biomed journey with me.
Re: All About Autism
Posted: Fri Jan 11, 2013 10:51 am
by Lavina
ImMeeMee wrote:I have never been open about my daughter's special needs condition to my circle of friends. albeit the very close ones.
It is not that I am ashamed of my daughter. She is a lovely girl, happy by nature and with a cheerful heart. She would laugh several times a day when something amuses her, or when she is doing something that she enjoys. She would try her best in the things that we teach her, and she would love a word of praise when she thinks she has done something well. Of course, being a special needs child, she has her quirkiness - words that sound non-sensical, comments that appear inappropriate, or a wall of silence when spoken to. She has her fair share of being rigid and being literal, and not being adequately self-sufficient in taking care of herself. She has her challenges of not being able to engage her peers in play, and being afraid of things that prove too much for her sensory systems.
Everytime I think of her I would smile to myself, in particular on this quiet morning where she has gone to school to start a new semester. I could almost hear her laughter and see her smile.
It was more of myself dealing with my emotions in not being able to share my story publicly. For a long 2 years, I would break down everytime I spoke about her condition. It was not that I could not accept the truth. It was not that I felt ashamed. It was just me reacting to the situation. My rational self was not able to contain my emotional self and it became a turmoil.
Maybe its age, maybe its the life experience, I find that I am emotionally calmer these days after having gone through something where not many other things could be worse. As mothers we grow more fearless, and as mothers of special needs children we grow to be more accepting, and less judging.
This year, I made a resolution to open doors in my heart. I want to celebrate, and not cower. I want to share, and not hide. I want to tell, and not keep.
There will still be the pressures that corner us, there will still be the mundane that frustrates us. I will still not be perfect, but when the heart and mind become free, it brings peace. And joy.
Open doors, and find open doors. I hope everyone will have a meaningful new year.
Hi ImMeeMee,
Your post resonates deeply with me; it made me teared. But I am not sure if I will ever be ready to "open doors".
On a happier note, I would like to share that my child did quite well in his O levels, net score is 10 points
. I came online to give away his secondary books (my post is under Garage Sale). Anyone interested can pm me.
Jia you wei da de ma ma men
Re: All About Autism
Posted: Fri Jan 11, 2013 2:03 pm
by ImMeeMee
Lavina wrote:
Hi ImMeeMee,
Your post resonates deeply with me; it made me teared. But I am not sure if I will ever be ready to "open doors".
On a happier note, I would like to share that my child did quite well in his O levels, net score is 10 points
. I came online to give away his secondary books (my post is under Garage Sale). Anyone interested can pm me.
Jia you wei da de ma ma men
Lavina
Actually I am also not sure whether I will ever be ready. But that has been my resolution and I have been working towards it.
Happy to share your joy about your son. Its stories like these that provide the inspiration to push on.
Cheers.
Re: All About Autism
Posted: Fri Jan 11, 2013 5:39 pm
by ArielMermaid
jme wrote:Biomedical treatment is not common in Singapore. I have seen so much improvement in my son that I started doing on my NT girl, my husband n myself too. I really hope arielmermaid n lavendery can come here more often to share their biomed journey with me.
Hi Jme,
I've actually been lurking around once in a while, just not contributing...
Do you have any specific questions? If yes, do let me know and I'd try to answer you.
Recently, I tried letting my son eat bread... He kept asking for more and more... and he was super "high" after that- not listening well to instructions and more giggly. So, back to GFCF. Although I'm not very strict: I only restrict food that obviously have gluten or dairy. What I do is to let him take enzymes before every meal; these enzymes are supposed to help him digest the gluten and casein proteins. So far, he behaves well even after he had things like breaded chicken, french fries, etc.
Re: All About Autism
Posted: Sun Jan 13, 2013 3:26 pm
by Karkar
slmkhoo wrote:Dear ladies, please don't fall into the trap of 'If my kid has to do xxx in P1, then I must make sure he practises it through K2'. Many skills are development-dependent, and just waiting that extra year can make the difference between picking up something easily and having to slog at it for ages. My daughter (nearly 16yo) has Asperger's and dyspraxia, and writing was also difficult for her, but once she got into P1, she did whatever the teacher asked her to, and although her writing was very poor, it improved. She only wrote more legibly by P3. Don't worry about NT kids' yardsticks, you can always explain to the teacher why there is a lag. More importantly, don't kill your child's motivation by demanding too much too soon. All your other fears - social skills, organisations skills, paying attention etc - we've been through it all. Take it one step at a time, and let your child lag behind NT kids if he needs it. Life is long, and there is no need to rush. Just my thoughts.
reality makes us be kiasu. thanks for sounding this out. I am taking my time and pacing myself although i am still lost. I am still trying to search for as much as resources i can find in sg land.
Re: All About Autism
Posted: Sun Jan 13, 2013 3:54 pm
by Karkar
Dear mummies,
Hope you had a good wkend break. Thanks for the comments you had for my decision. Well, well. I am still looking for the resource i can possibily find. Two things that come to my mind, one is my boy's gut problem, another is the new therapy RDI program i want to embark on.
some background on my boy. I decided not to bring him to KKH for assessment as i know him well. at his age, 2 years and 3 months, most likely i will get a date for review 6 months later. without it, i probably can't enjoy the service provided by KKH.
For mummies who has gotten the clinical assessment in KKH, the "more than words" henan';s program is quite good. You can subsidies from the gov so you only need to pay half of the program fee. I wish i could get that too.
My boy has some atopic rashes as the GP terms it. and his constipation problem pains him a lot. his poo is super duper big, which brings him a lot of pain in the first few pushes. Hes now very reluctant to poo. I wanted to get him allergic test, now i guess i can't because i dont have a good reason in government system to do that. my next step is probably to find a DAN! doctors (expensive, i know). Only two clinics i find online are
DAN (Defeat Autism Now)
by lamp ยป Mon Feb 22, 2010 9:38 pm
Service providers in Singapore
1) DAN Doctor - Dr. Erwin Kay (Tel : 64438322)
http://www.kcsmed.com
Services : Biomedical Treatment, Hair Toxic Element Test (Doctor Data, Inc), Bioresonance, B12
2) DAN practitioner - Dr Ang Poon Liat and Mr John Yeo and (Tel : 62536257)
http://www.the-autism-clinic.com
Services : Biomedical Treatment, HBOT
Currently My boy is receiving 2hr/day ABA session at home. I came across some talks on RDI approach, and i like their philosophy. however, i dont think mummies here in the support group use this approach much. I read somewhere online that their service is in the range of $200-300/hr, which is more expensive of my home ABA session. There are 5 RDI-certified consultants in SG now. I wonder if any mummy knows about any of them. afterall it's parent training program, i can use my half day to get involved.
From RDI website
SINGAPORE
Genevieve Chua, M.A. (Educational Psychologist)
Children's Partnership Pte Ltd.
54 Jalan Selaseh
Singapore 808468
Phone: +65.6482.2339
Email:
[email protected]
Website:
www.childrenspartnership.com.sg
Other language spoken: Mandarin
Alex Liau Whatt Meng, B.S.S. Psy. (Honors)
Nurture Pods Pte Ltd
9 Temasek Blvd
#09-01 Suntec Tower 2 (By Appt Only)
Singapore 038989
Phone: 6352 5938
Fax: 64071501
Email:
[email protected]
Website:
www.nurturepods.com
Other Languages Spoken: Mandarin and Dialect
Ada Chung Yee Lin, M.A., CSFT, Registered Social Worker and Counselor
Children's Partnership Ptd Ltd
54 Selaseh
Singapore 808468
Phone: (65) 64822339
Email:
[email protected]
Website:
www.childrenspartnership.com.sg/
Other language spoken: Cantonese
Mr. Bimal Rai, M.A. (AppPsy), B.Sc. (Hons), B.A., DISE (Registered Psychologist)
R.E.A.Ch Therapy Services
No 14, Robinson Road,
#13 - 00, Far East Finance Building,
Singapore 048545
Phone: +65.9858.7160
Email:
[email protected]
Website:
http://www.reachtherapy.com
Michelle Tham, B.Sp.Path. (Hons)
Leapfrogs Pte Ltd.
144 Bukit Timah Road
Singapore 229 844
Phone: +65.6733.1922
Email:
[email protected]
Website:
http://www.leap-frogs.com
Lastly, if my boy doesn't get assessed in KKH, does it mean that he can't go gov OT program? it seems that he needs some OT training, i just wonder if he can get any help from gov subsidies before i send him to private
Mummies, need your honest opinions on my planning for my son's therapies. Thank you very much.
Re: All About Autism
Posted: Sun Jan 13, 2013 4:04 pm
by Karkar
Where do u intend to relocate your son to? your whole family relocating? my son went to kkh and was referred to join eipic program. it's being subsidized based on salary group
to nugget,
yes, it's whole family relocating. my son hasn't done kkh assessment, judging on his condition and his age, i dont think i will get anything kkh until much later. so i guess eipic program is gone out of the questions.
Singapore is the safest Plc in the world .
If u hav money don't need to go kkh... Just go private eipic in Singapore n go international school don't go singapore govt school ..
To helplessmum3
Yes, I love SG but it's not cheap without government support. I dont have the money for long term private school and it's hard to get into international school with Sg passport, isn't it? else all rich men will send their sons to escape the sg education system.
Kar kar, if I may, whether or not to relocate is a personal decision. But the way I see it, everything comes in a package - where there is good there is bad. Its the same in SG n everywhere else.
Since you have not found out enough about home ground, do give yourselves a chance to find out more before deciding. While the situation is not perfect, there are still support programs out there for us to make good use of.
I find that ASD awareness in SG has been improving. There is another report on the need to have holistic approach for ASD in ST today. With more reports like these n more attention from the govt on this area, I think that one day the infrastructure for ASD adults will improve too, now that the educational framework for ASD has improved.
to ImMeeMee
yes, you may. all honest opnion is helpful. you are right that i need to find out more about homeland. besides here, i dont find any other support group out there, which is willing to share information. others forums i visited have little exchanges. Do you wanna share the support groups/programs that you know?
Thank you all mummies!! i will continue to equip myself with more knowledge and information.
Re: All About Autism
Posted: Sun Jan 13, 2013 4:33 pm
by mashy
Karkar
My son was not assessed before he was admitted to the kkh rehab for OT and ST. So I don't see how u can't gain access to it.
And I also sent him for allergy test. Same thing, I don't understand why u can't send yours for it. I just said mine was always coughing and I just wanted to test it and I wanted my younger gal to get tested too.
In fact, u can request to see a dr on allergy in kkh. Get the test done and get a referral to see the OT and ST rehab from that doctor.