Fund Raising For Little Khang

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Fund Raising For Little Khang

Postby MsHuppy » Sun Oct 23, 2016 3:14 pm

Hi Kiasuparents community,

I would like to bring to your attention little Khang who is now hospitalised in NUH. I know about his plight through my hubby's niece, Dr Ooi Pei Ling who is his attending doctor.

Khang is suffering from 4 month prolonged fever and his parents have decided to bring him to Singapore to get a better diagnosis and that is when they consulted Dr Ooi. Little did they expect to hear he would suffer from a rare disorder known as HyperIgM Syndrome that would require a bone marrow transplant. This transplant costs $200,000.

Right now, the bone marrow donors can come from either parent so the only thing standing in the way between the 20 month old boy and his bright future is money. Antibiotics can probably only sustain his life on a short term basis. Even the doctors are unable to ascertain how long they can prolong his life as it can be as short term as 3 months :cry: .

When this was brought to my attention by Dr Ooi and the other cousins, besides donating, I decided to put in a little efforts to spread the word to the parents community so that parents can come forward to help. Be it a dollar, a prayer or just spreading the word, every little efforts will help create mircle in this little one's life.

As a mum of 3 young kids, it pains me to know that this little one is suffering and I want to be able to contribute no matter how insignificant my efforts are.

I believe in the power of community and I know that parents can relate even better to the suffering of the family.

The child's mother has created a crowd funding page: https://give.asia/movement/little_khangs_transplant while my cousin Mak has created a FB page to give updates and answer some questions on his illness: https://www.facebook.com/littlekhang/ .

To date, we have received closed to $35,000 from many kind souls. Though we are still very far from the target and the hospital will not proceed until they see a big portion of the money has been raised, we would like to believe and press on in this crowd funding efforts.

Any efforts by the kiasuparents community is greatly appreciated! :salute:

MsHuppy
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Re: Fund Raising For Little Khang

Postby MrsKiasu » Sun Oct 23, 2016 4:24 pm

May I know if there is any walk in donation arrangement at NUH like donation box for Little Khang etc?

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Re: Fund Raising For Little Khang

Postby Matthew2540 » Sun Oct 23, 2016 10:57 pm

Hi MrsKiasu,

I am Mak, currently helping Hoan (the mother) in fundraising efforts. Unfortunately due to conflict of interests, Dr Ooi is not able to be involved in the fund raising process but since I am in regular contact with both I can relay any messages or queries.

The best is still to give via GIVEasia, https://give.asia/movement/little_khangs_transplant as they are a trusted platform that has since helped multiple projects raise a combined 11 million dollars. If you should feel uncomfortable donating via online, I can put you in contact with the mother for you to bless her. You can also find out more about the cause you will be supporting then.

I will be updating on this thread regularly on the progress of the baby. I beseech everyone on this community to give generously. I believe that as a collective we can save the boy's life. I believe the mother is feeling helpless now because she never imagined that she would be staring at a staggering $200,000 bill for a rare disorder when she first brought her son in for diagnosis.

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Re: Fund Raising For Little Khang

Postby MrsKiasu » Mon Oct 24, 2016 5:22 am

Thanks for the info Mak.

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Re: Fund Raising For Little Khang

Postby Matthew2540 » Mon Oct 24, 2016 1:14 pm

Image

[Credits: Lian He Wan Bao]

Khang's case was reported on Lian He Wan Bao and to sum up briefly, he is suffering from a rare disorder HyperIgM Syndrome that has only been treated 9 times in the past 20 years in Singapore. Singapore is one of the few countries in the world with the experience of treating this disease.

Hyper IgM syndrome is a rare inherited disease resulting in an immune system which doesn't work. Our immune system is meant to protect us from infections by fighting germs away. However, children with Hyper IgM syndrome are not able to do that. They are prone to recurrent and life-threatening infections, inflammation and are at an increased risk of cancer. This condition is extremely rare - approximately around 1 in 1 million babies. That is why it was difficult to diagnose Khang's illness - doctors in Vietnam did not know what was wrong with him and he had to come to Singapore to find out what is wrong.

For his condition, Little Khang needs to go through a very specialised bone marrow transplant that only a few countries in the world are able to do, and Singapore is one of them. He cannot get this treatment in Vietnam. The transplant will involve many special tests to make sure he gets a suitable bone marrow donor, chemotherapy, radiation and many different medicines to fight germs while his body is preparing to receive the new bone marrow. All these cost a lot - they have been told that they need at least SGD200,000. It would possibly cost more if there are any complications.

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Re: Fund Raising For Little Khang

Postby MrsKiasu » Mon Oct 24, 2016 1:27 pm

Good that it has been published in newspaper..will get a wider outreach.

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Re: Fund Raising For Little Khang

Postby MsHuppy » Mon Oct 24, 2016 2:21 pm

Hi parents,

I am glad to share that we have achieved $40k from $33k donations when I checked yesterday. Though we are still a long way to reach $200k, I believe little Khang would really appreciate and thank all those who have donated, prayed or even spread the words. :udawoman: :udaman: :thankyou:

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Re: Fund Raising For Little Khang

Postby MrsKiasu » Mon Oct 24, 2016 2:39 pm

May be a good time to teach my kids..I ask see if they agree to forgo their birthday presents for good deed.

Wish little Khang could get a chance to continue smiling.

btw, what are the chances for full recovery for this kind of rare cases? Is the operation a very urgent type?

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Re: Fund Raising For Little Khang

Postby Matthew2540 » Tue Oct 25, 2016 9:50 am

Hi Mrs Kiasu,

Thank you for your continued interest in this. I do think it is a fantastic way to impart certain lessons to children. I too chose to forgo a particular purchase in order to donate more money. It is a lesson on needs versus wants.

As for your question, in the severe type of Hyper IgM syndrome, the only cure is a bone marrow transplant - the transplant will give a child a new immune system. There are always risks, such as severe infections, with a bone marrow transplant as well. But it is the only chance he has of having a normal or near normal life.

There is a high chance of recovery, but its hard to put a number to it according to the doctors.

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Re: Fund Raising For Little Khang

Postby MrsKiasu » Tue Oct 25, 2016 10:18 am

Thanks Mak for all the info..paiseh, as if I m going to donate many dollar like that :oops:

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