All About (Global) Development Delays

Discuss issues related to children who have special needs or learning difficulties

All About (Global) Development Delays

Postby little doggie » Thu Jul 29, 2010 2:23 pm

Hi

any mummies have any experiences on the above. any of your child having early intervention at EIPIC Centre.

Can share your experience.

Thanks

little doggie
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Postby pingsped » Fri Jul 30, 2010 1:24 am

hi

the EI programme at rainbow centre for Down syndrome is good, esp the physical therapy (for crawling, walking, & other gross motor stuff)

the EI programme at Spastic Sch is also good.

for speech therapy, it's best to go private though.

As a general rule, if a child is fairly unresponsive due to poor motor function or severely delayed physical development (approx abt 18 mth), it is necessary for PT or OT to work on sensory-motor devm. In essence, daily therapy may be reqd. It is advisable to enrol in a 5-day programme with a VWO or mix it up with therapy at VWO and private ctr.

Hope this helps.

PS I define a 'good' programme as one that helps a child achieve age-appropriate norms. eg a child with down syndrome will achieve milestones such as walking by 18-24 mth, which in turns helps him work on other developmental issues. While speech devm may be slower, a good speech therapist can help a child with DS talk some words or sign by 24 mth.

pingsped
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Postby little doggie » Sat Jul 31, 2010 7:28 am

Hi pinksped,
thks for your reply. have tried searching for infor on these centres but without much result.

my son now 22mths was disgnosed with GDD when he was 18mths old. He has been having PT for the past 3 mths and recently having ST and will be starting his OT next week. All these are at the NUH.

The reason i m asking abt the EIPIC is becos NUH had advised me to let my son go for Early interver. at the centre. They told me the Therapy there will be more frequent and will help my son more when he grows old. Cos they expect him to have some learning difficults too.

Can i know if parents can accompany their kids to the centre during their therapy?

can i ask what is VWO??
and can i know why it is better to go private for speech therapy and where do u recomend.

thks again:P

little doggie
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Postby pingsped » Sun Aug 01, 2010 5:02 pm

little doggie wrote:and can i know why it is better to go private for speech therapy and where do u recomend.

thks again:P


hi little doggie mummy,

how an EI programme is perceived as good or otherwise depends on parents' expectations & experience as well as child's diagnosis & needs.

VWO - voluntary welfare organisation
Most, if not all, special edn schools are run by not-for-profit VWOs.

Fr my experience, children with severe gross motor difficulties (<18 mth, pls refer to health booklet) will benefit from regular PT. OT at VWOs tend to focus on life-skills such as toileting, dressing, feeding, handwriting, etc. It generally does not address sensory integration dysfunction (SID). Children with SID may have difficulties in motor planning ie they have poor generalisation of skills eg can stand on one leg upon request but can't kick a ball. Parents may accompany children in some programmes.

ST at VWOs - it's very hard to address needs properly when there are a few hundred non-verbal children who need intensive therapy. Most special sch have 1 speech therapist. Parents usu do not sit in. Maybe 1-2x per term/semester.

NUH therapists are generally good but they may have difficulties with children who are not co-operative. If u r able to get regular slots, I would say stick with NUH unless u r very sure the VWOs can do a better job.
Pls note that once u enrol yr child in a special sch, it is likely that NUH will stop all therapy so that other kids get a chance at having therapy.

Pte speech therapy
- it depends on your child's current communicative profile, speech/language & cognitive development.
As pte speech therapy is costly, it is advisable to work on communicative intent & behv compliance first. This will reduce amt of wasted time & money. Some children will cry, run around or simply not cooperate/resist.

Most pte STs (not all) will spend some time assessing, then stimulate certain sounds. Some STs do very limited oral-motor exercises as they don't specialise in it. They are usu not good with children with poor motor control. Most will allow parents to sit in unless the child is distracted.

communicative intent - joint reference : express wants by pointing to objects, listening to parents
behv compliance - complying with 1 step instructions eg put bottle on table, wear shoes, give bottle


Hopefully this info is of use to other parents too.

I know of some children with GDD (not ASD or physical disability) but have benefited from dedicated childcare teachers. GOOD childcare teachers can train a child to be fairly independent. The kids perform better than peers from special sch. In one case, the single mum was totally uninvolved due to work, the teachers insisted therapy as they felt he can't cope with Pr 1 without help although he is only slightly delayed at 6 yr old. The boy was enrolled in the childcare from 18 mth.

I think u have to assess yr options to ensure maximum $ benefit :
a) EI + pte ST
b) daily home training + NUH (recommended if care-givers r organised, well-educated & not indulgent)
c) childcare + NUH (recommended if grandparents or parents do everything for child)
d) EI + childcare + pte ST (super KS option)

In theory, a child with GDD can achieve most 5-6yr milestones within 6-8 yrs with GOOD EI. Only the socio-emotional devm will be delayed.

Pls PM me if u want to discuss details of your child's conditions in private.

pingsped
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More information about EIPIC

Postby jnlmommy » Mon Aug 02, 2010 5:28 pm

Hi there. If you need more information about the EIPIC centres, check out this link

http://www.cel.sg/Contents/Images/EIPIC ... un2010.pdf

There is also general information available from www.cel.sg

Hope that is useful.

jnlmommy
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Postby little doggie » Tue Aug 03, 2010 11:16 am

Jnlmommy, thanks for the link, actually i have been to the website...but still thank you for the effort and reply:P

pingsped,
wow u are very knowledgable on this. Thanks for the lengthly but informative message.

i m going to visit the rainbow centre at margret drive today, hope to know more of the centre and see if it is suitable for my son.

Do u have any recommedation on ST?

I still cant decide which option is more suitable for my son...sigh...headache...

Money is definitely is an issue, but will let him have whatever early intervertion he required.

Will pm u later, now busy with my work.

Thank you again:P

little doggie
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GDD vs Autism

Postby WaWa » Wed Aug 04, 2010 10:22 am

Hi All

Can I ask what's the main difference between GDD & Autism?

My son has autism. I remembered last year when he was attending early intervention at a certain centre, we met another boy whose parents told me he has GDD. However, his parents told me they felt he could have autism but because the KKH doctor "labelled" him as having GDD, she could not start waitlisting her son at any of those EIPIC meant for Autistic children. The mother asked me how I "managed to waitlist my son at AAS" and I told her "well, the KKH doctor arranged it and I guess it was possible for my son to start waitlist cos he was diagnosed as having Autism".

Sadly, I have lost touched with the mother.

And it sets me thinking what if the boy was Autistic but was not diagnosed as such and "lost an opportunity to have a go at those EIPIC catered to Autism".

Parents of GDD children - has any of your children been diagnosed as having GDD only to realise at a later stage that he is actually Autistic (cos i have read that the traits are pretty similar).

As a parent of an Autistic boy, I do feel "sorry" if similarly autistic children "missed their opportunity" to enter appropriate special school to help them develop.

And how to tell apart GDD and Autism?

Thanks for your inputs :) And may the FORCE be with us, parents of special needs children :)

WaWa
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Postby jnlmommy » Thu Aug 19, 2010 11:24 am

Dear WaWa

Development is broadly grouped into Motor, Language, Adaptive/Cognitive and Personal/Social. Developmetal Delay is given as a diagnosis when the child does not achieve milestones (of one area) by expected age. Global developmental delay is in 2 or more areas.

Autism is a more complicated disorder to diagnose.

Some children with autism will also have delays in more than one area. Most will have delays in personal/social or language. There are children with autism with no cognitive problems.

Hope that helps :)

jnlmommy
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Postby little doggie » Mon Sep 13, 2010 5:02 pm

Juz to update i have enrolled my son to Fei yue. Going to have the assessment this month year. Anyone have been to the assessment before? Can share what do expect?

His NUH PT was stopped temporary since mid August and lucky i managed to get appts for him ard early oct. Think PT is really shortage in Singapore!

He is still babbling and not calling mama or papa.

little doggie
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Developmental Delay

Postby mummy always » Tue Mar 08, 2011 11:37 pm

Hi, just wondering whether there is a discussion on developmental delay in children. I don't think my son is autistic, and he does not seem to fit into the category of dyslexia as well

He is turning 5 this year, but has just started being familiar with the alphabets despite having been in school for 2+ years (since he was 3). In fact, he only learnt the alphabets/phonics well after I let him watch leapfrog videos (they are excellent, i can therefore conclude).

Till now, he is still struggling to learn to sound-out words (i just taught him "he", and had much difficulties teaching him things like "up", "of"). Needless to say, Chinese is worse for him. Thankfully at Berries he is able to read the stories, mostly through memorising, but his learning in recognising words is very slow. I think he can recognise no more than 10 characters, and i am not sure if he can even recognise his own name.

He is also not able to speak very fluently. He spoke very late, and till now, is unable to express himself in complicated situations (i.e. he can say things like "may i play with this pls", or "i like to go to school", but unable to express new situations e.g. if he wants to tell a story). He is unable to express concepts like last night, or last time. He just is able to say yesterday (past) and tomorrow (future). I suspect that he has expressive language diability/disorder.

By the way, he is also very small in size (below 3 percentile in height), so coupled with his language ability, most people think he is three years old. He is ok socially and in terms of motor skills though.

I have gotten him an appointment for assessment at KKH but that's in May. Meanwhile, being a kiasuparent, I just want to know if anyone of you have any experience/stories to share about children with developmental delay - suspected or otherwise. Is there an option for them to start school a year late?

Thanks

mummy always
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